Myra Bluebond-Langner (B.A.,
Temple; Ph.D., University of Illinois, Urbana) is Professor and True Colours Chair in Palliative Care for Children and Young People, University College London, Institute of Child Health (appointed 2010) Board of Governors' Professor of Anthropology, Rutgers University, Camden, NJ (2010-present-currently on leave) Honorary Contract, Palliative Care Service, Great Ormond Street Hospital for Children, London (2011-present). She is also the Founding
Director of the Center for Children and Childhood Studies
at Rutgers University, Camden and the Editor
of the Rutgers
University Press Book Series in Childhood Studies.
received the Margaret Mead Award from the American Anthropological
Association and Society for Applied Anthropology in 1987,
the Warren Susman Award for Excellence in Teaching from
Rutgers University in 1990, the Charles Corr Award for
contributions to the literature on children and death
Hospice International in 1997 and the Research Recognition
Award from the Association for Death Education and Counseling
in 2000, and the Rutgers University Board of Trustees
Award for Research Excellence (2009).
Bluebond-Langner is the recipient of grants and fellowships
from the: National Endowment for the Humanities, National
Science Foundation, American Council of Learned Societies,
Johnson and Johnson Family of Companies, Schumann Fund
for NJ, as well as the Olivia Hodson, Howard, John S. and
James L. Knight, Annie E. Casey, Verizon, Geraldine Dodge,
Stanley Thomas Johnson, Kurr, William Penn, and Fannie
E. Rippel Foundations.
of several articles in journals and edited collections;
she is best known for The
Private Worlds of Dying Children (Princeton
University Press, 1978), In
the Shadow of Illness: Parents and Siblings of the Chronically
Ill Child (Princeton
University Press, 1996) and The Psychosocial Aspects
of Cystic Fibrosis (with Denise Angst and Bryan Lask,
Arnold and Oxford University Press Publishers, 2001).
Bluebond-Langner serves on the editorial boards of Children
Clincal Child Psychology and Psychiatry, Ethos: Journal
of the Society
of Psychological Anthropology, Omega: Journal of Death
Bluebond-Langner is working on a book Physicians'
Voices, Parents Choices: Decision Making for Children
With Cancer When Cure is Not Likely. The book is
based on a two year ethnographic, participant-observation
study of the children, parents and clinicians at two
major pediatric oncology centers – one in the US,
one in England.
Currently, Prof. Bluebond-Langner is
on leave from Rutgers University, serving as the UK’s
first chair of pediatric palliative care at the University
College London Institute of Child Health.
>>> Full CV - revised Aug 2011 - 21 pages (pdf)
Mixed-Method, Processual Evaluation Research (including audits, surveys as well as open-ended semi-structured interviews, systematic observation and participant-observation as part of ethnographic research) for Service Development and Educational Programs in Palliative Care for Children and Young People
Rajapakse D, Finella Craig, C, Boggs T, Howard R, Walker, S, Bluebond-Langner M: Optimising
Parenteral Analgesia In Children With Life-Limiting Conditions and Life Threatening Illnesses: Developing A Home Patient Controlled Analgesia (PCA) Service For Children and Young People With Life-Limiting Conditions and Life threatening Illnesses (2011).
Craig F, Bluebond-Langner M: Changing The Culture Of Care In Tertiary Centres: Integrating
Palliative Care Services Into The Care And Treatment Of Children With Life-Limiting Conditions And Life-Threatening Illness (2010-2011).
O'Gorman B, Craig F, Bluebond-Langner M: Improving Access To Spiritual Support For Children
And Young People With Life-Limiting Conditions And Life-Threatening Illnesses, Their Parents And Other Family Members: The Development Of A Spiritual Support Network Across North Central London That Is Sustainable And Accessible To Families From All Faith Backgrounds (2010-2011).
Mancini A, Craig F, Bluebond-Langner M: Improving Access To Palliative Care Support For Babies
And Families: Educational Program To Introduce Principles, Practices And Resources In Palliative Care Services In Neonatal Units Across Greater London (2010-2011).
Ellis, P and Bluebond-Langner M, Rapid Response For Home Care At End Of Life: A Pilot Project In
North East London (2010-2011).
Gibson F, Kelly D, Kumpunen S, Horstman M, Bluebond-Langner M: Talking With Children With Cancer About Their Disease And Treatment: A Prospective Study To Improve Practice (2011-2012).
Pilot Study Utilizing Grounded Theory in the analysis of semi-structured, open-ended interviews
Bluebond-Langner M, Jones. L, Kelly, P, Sterling C, Craig F. Helmsley, J, Franck L. Advance Care Planning For Children And Young People With Life Threatening Conditions And Life Limiting Illness: Parents' Experiences In Planning For Their Child's Care And Treatment.
Beecham E, Jones L, Bluebond-Langner, M: The Place Of Care In The Face Of Deterioration And Death In Children And Young People With Life-Limiting Conditions And Life-Threatening Illnesses.
In the Shadow of Illness: Parents and Siblings
of the Chronically Ill Child. Princeton: Princeton
University Press, 1996. Paperback edition: May, 2000.
The Private World of Dying Children.
Princeton: Princeton University Press, 1978. * First paperback
edition, 1980. Remains in print.
* Translated into Japanese and published by Nihon, Kango,
Kyokai, Shuppankai. Tokyo, Japan. 1990. Copies available
in U.S. 1993.
Children, Childhoods and Childhood Studies with
Jill Korbin. Special In
Focus Section of The American Anthropologist.
Forthcoming April 2007.
Psychosocial Aspects of Cystic Fibrosis. With Bryan
Lask and Denise Angst. London: Arnold Publishers, NY: Oxford
University Press, 2001.
Research in Thanatology: A Critical Appraisal. Special Issue
of Omega, Volume 18, Number 4, Spring, 1988.
Understanding and Communication About their Cancer When
Cure Is Not Likely” With
Megan Nordquest Schwaille. In Healing the World’s
Children: Interdisciplinary Perspectives on Child Health
in the Twentieth Century. George Weisz, Cynthia Comacchio and Janet Golden,
McGill-Queens University Press. 2008.
"I'm an anthropologist”: Adolescents Studying Children and Each Other." Anthropology
News Vol 49, No. 4, April 2008.
“Using Participant Observation in Pediatric Health Care Settings: Ethical
Challenges and Solutions” with F. Carnivale,
M.E. MacDonald and P. McKeever. In Journal of Child Health Care Vol.
12. No.1, January 2008
“Understanding Parents’ Approaches to Care
and Treatment of Children With Cancer When Standard Therapy
Has Failed” with Jean Belasco, Ann Goldman and Carmen
Belasco. Accepted February 26, 2007 for publication
in Journal of Clinical Oncology, Vol.25,
No.17, June 10, 2007.
and Opportunities in the Anthropology of Childhood” With
Jill Korbin in The American Anthropologist.
Vol.109, No.2, June, 2007
“Children’s Views of Death.” With Amy DeCicco In Oxford
Textbook of Palliative Care for Children. Ann Goldman, Stephen Lieben, & Richard
Harnes editors. Oxford University Press. 2006
Volume received first prize for new edited book at 2006 Royal Society of Medicine
"Involving Children with Life-Shortening Illnesses
in Decisions About Participation in Clinical Research:
A Proposal for Shuttle Diplomacy and Negotiation.” In Ethics
and Research with Children. Eric Kodish,
editor. Oxford University Press. 2005.
Views of Death and Illness.” In Oxford Textbooks
of Pediatric Palliative Care. Ann Goldman, Stephen
Lieben, & Richard Harnes, editors. Oxford University
Child’s View of Death.” In Current Paediatrics,
Volume 4, Number 4, December, 1994.
"Olga’s New Year.” In Dying, Death
and Bereavement: Theoretical Perspectives and Other Ways
of Knowing. Inge Corless, Barbara Germino and Marianne
Pittman, editors. Boston: Jones and Bartlett. Fall, 1993.
"Chronically and Terminally Ill Children: Research
Directions for the 90's.” In Loss, Grief and Care,
Volume 6, Number 1, pages 61-72, 1992.
[NB Permission also given for reprinting in The Thanatology
Community and the Needs of the Movement, Elizabeth
Clarke, editor. New York: Haworth Press, 1992.]
"The Impact of AIDS Education on College Student’s
AIDS Related Knowledge, Attitudes and Behavior.” With
Ted Goertzel. In Journal of American College Health,
Volume 40, Number 2, pages 87-92, September, 1991.
"Living With Cystic Fibrosis: The Well Sibling’s
Perspective.” In Medical Anthropology Quarterly,
New Series, Volume 5, Number 2, pages 133-152, June 1991.
"Pediatric Cancer Patient’s Peer Relationships
The Impact of an Oncology Camp Experience.” With Dale
Perkel and Ted Goertzel. In Journal of Psychosocial
Oncology, Volume 9, Number 2, pages 67-80, Summer,
"Living With Cystic Fibrosis: A Family Affair.”
In Young People and Death, John D. Morgan, editor.
Philadelphia: Charles Press, 1991.
[NB This paper is a revised and updated version of an article
with the same title that appeared in Cystic Fibrosis:
Soma and Psyche, Daniel Schidlow, editor. Pennsylvania:
McNeil Laboratories, 1987.]
"Children’s Knowledge of Cancer and Its Treatment:
The Impact of An Oncology Camp Experience.“ With Dale
Perkel and Ted Goertzel. In Journal.of Pediatrics,
Volume 116, Number 2, pages 207-214, February, 1990.
[NB Abstract and commentary in Pediatric Alert,
Volume 15, Number 7, March, 1990].
"Children, Dying.” In The Encyclopedia of
Death, Robert Kastenbaum, editor-in-chief. Arizona:
Oryx Press, 1989.
"Siblings of Dying Children.” In The Encyclopedia
of Death, Robert Kastenbaum, editor-in-chief. Arizona:
Oryx Press, 1989.
"Illness and Death in the Lives of Children and Their
Families.” In Death Studies, Volume 13, Number
1, pages 1-16, Spring, 1989.
[NB Reprinting at the request of the editor, Ken Doka, In Children Mourning, Mourning Children. Bristol,
Pa: Taylor and Francis and the Hospice Foundation of America,
"Wither Thou Goest?” In Omega,Volume
18, Number 4, pages 257-263, Spring, 1988.
"Knowing, Concealing And Revealing: Communication in
Terminally Ill Children.” In Children and Their
Organizations. T. Sieber & A. Gordon, editors.
Boston: G.K. Hall & Co., 1981.
"Comments on Sex, Incest and Death: Initiation Rites
Reconsidered.” In Current Anthropology, Volume
18, Number 2, page 192, 1977.
"Meanings of Death to Children.” In New Meanings
of Death. Herman Feifel, editor. New York: McGraw-Hill,
[NB: This book received the 1977 American Journal of Nursing
I Came to Study Dying Children.” In Rhetorical
Considerations, Harry Brendt and William Lutz, editors.
Cambridge: Withrop (a division of Prentice Hall), 1976.
"I Know, Do You?: A Survey of Awareness, Communication
and Coping in Terminally Ill Children.” In Anticipatory
Grief. Bernard Schoenberg et al, editors. New York:
Columbia University Press, 1974.
||Rutgers University Board of Trustees Award for Research
for Death Education and Counseling Research Recognition
A. Corr Lifetime Achievement Award in Literature On
Children and Death. Presented by Children’s Hospice
I. Sussman Award for Excellence in College Teaching.
Presented by Rutgers University
Mead Award. Presented jointly by the American Anthropological
Association and The Society for Applied Anthropology
Moses Memorial Award in Anthropology, Temple University
Sachs Memorial Prize for General Excellence in All Studies,
Olivia Hodson Foundation Grant (co applicant) (2010-2012)
Department of Health, United Kingdom grant (2011).
Baker-Nord Center for the Humanities Fellowship,
Case Western Reserve
University (Fall 2005).
National Endowment for the Humanities Fellowship (2005;
Stanley Thomas Johnson Foundation (Switzerland) (2002-2004);
Johnson and Johnson Family of Companies (2003-2004; 2002-2003,
2001-2002, 2000-2001, 2005-2006; 2006-2007);
REACH Fund, Great Ormond Street Hospital, London, England
Fannie E. Rippel Foundation (2000-2002);
Campbell Soup Foundation (2000);
National Hospice and Palliative Care Organization (2001-2002;1999-2000);
Olivia Hodson Foundation Fellowship (1998-1999);
American Council of Learned Societies Fellowship (1992-1993);
Howard Foundation Fellowship (1988-1989);
American Cancer Society Grant (1986-87);
National Science Foundation Grant (1984-87);
Rutgers University Research Council Grants (1987-88; 1984-85;
Rutgers University Research Council Study Leaves (1985;
Rutgers University Research Council Summer Fellowship (1976);
National Science Foundation Fellowship-Traineeship (1970-74);
University of Illinois Summer Research Grant (1971);
Philadelphia Board of Education Tuition Scholarship (1965-1969).
For Evaluation Research For Intervention, Demonstration, Education and Service Development Projects in Palliative Care for Children and Young People,
Department of Health, England (2010-2011)
DEMONSTRATION, SERVICE AND OUTREACH PROJECTS
Camden Development Block Grant (2004-2005).
Aetna Foundation (2003-2005.
Rite Aide Foundation (2004-2005).
The Wm. Penn Foundation (2003-2005, Summer 2002).
The Kurr Foundation (2002-2003).
Verizon Foundation (2002-2003).
Geraldine Dodge Foundation (2002-2003, 2003-2004).
The Schumann Fund for New Jersey (2002-2003).
Annie E. Casey Foundation (2001-2002).
John S. and James L. Knight Foundation (2001-2003; 2000-2001).
Committee on Multiculturalism Teaching Grant, Rutgers University
Rutgers University Dialogues Program (2002-2003)
Department of Higher Education of New Jersey, Technological
Literacy Program (1987-90).
Department of Higher Education of New Jersey, Humanities
Grants Program (1984-85).
Rockower Foundation Teacher Initiated Experimentation Grant
FOR CHILDREN AND CHILDHOOD STUDIES
The Wm. Penn Foundation (2003-2005, Summer 2002).
The Kurr Foundation (2003, 2004, 2005).
Johnson and Johnson Family of Companies (2003-2004; 2002-2003,
Rutgers University SROA Program (2001-2002, 2000-2001).
Rutgers University Board of Governors (2002-2003)